I am 30 years old and was diagnosed with breast cancer, specifically invasive ductal carcinoma. Before my diagnosis, I didn't even know what that meant. Now I have been forced into a reality where I not only know what it means but my doctors appointments and daily thoughts are filled with other previously unfamiliar words like neoadjuvant therapy, metastases, HER2 and triple negative.

I started this blog in hopes that some of the information I share may be helpful to other young women in a similar situation. Rather than posting my day to day experiences, feelings and progress, I plan to share some of the things I have learned along the way. Being dealt this hand in life at 30 years old brings with it some unique issues and questions. Will I ever have kids? How will this affect my relationships with my husband and friends? What is my long term prognosis?

Through this site you may find that my way of dealing with things is a bit different. I want to be educated about my disease and take an active role in my treatment and recovery. I want to understand every part of my pathology report, what it means, and feel confident that my doctors are recommending the best course of action. At each stage in my journey, I have experienced challenges with finding answers to my questions and ensuring that the medical professionals treating me really understand who I am and why my way of dealing with this disease may be unlike other women. My hope is that people will be able to relate to my experiences, learn from them and find some comfort that they are not alone.

Tuesday, 26 April 2016

Supplements

I just watched the third episode of The Truth About Cancer which mainly focused on supplements, juicing and GMOs. It was equally as intriguing as the second episode and made me want to write a post about supplements. When I started seeing a Naturopath, my initial thoughts were that the supplements won't be able to kill cancer cells but at least taking them will make me feel like I am doing something to continue "treatment" when radiation ends.

After watching several documentaries including The Truth About Cancer and hearing about the effects of supplements like Curcumin and Green Tea extract for example, I am more convinced that they have the ability to kill cancer cells while protecting normal tissue. As they said in this episode, most people with cancer have chronic inflammation and if you stop the inflammation, you stop the cancer from forming. I know this was my case as I had my ferritin levels checked part way through chemo and was surprised at the results. Ferritin is an indicator of inflammation in the body and my levels were 3 times the maximum of the normal range.

Now I am still cautious and there are some things I will never believe like the woman they interviewed who said she expelled a tumor from juicing. Really?!? No one has to convince me about the benefits of juicing but come on. That nonsense aside, many of the supplements they talk about do have evidence behind them. I am always interested in what supplements others are taking to prevent recurrence so in the spirit of information sharing, will list out what I currently take. I am in no way suggesting that others follow this regimen.

IV Vitamin C - 50 grams once a week
Helixor (Mistletoe) - once a week with Vitamin C (amount changes)
Alpha Lipoic Acid - 150mg three times a day
Green Tea Extract - 700mg three times a day
Curcumin - 120mg twice a day
Melatonin - 20mg once a day
Coq10 - 100mg once a day
Vitamin D - 5,000 IU once a day

This may seem like a lot and odd coming from someone who asked their Oncologist for more chemo after 4 rounds of AC and 4 rounds of Taxol, however, now that I am educating myself about natural therapies, I am feeling much more comfortable with the drug-free path that I am on.

Thursday, 21 April 2016

The Truth About Cancer

I signed up for The Truth About Cancer docu-series because I saw an advertisement pop up on Facebook. 90% of my internet searches these days are cancer related so it is no surprise that these ads are what show up in my feed (interspersed with celebrity gossip ads). I watched the first episode and wasn't really buying it. The way that Ty Bollinger introduced the series and the barrage of e-mails I had been getting leading up to the release of the first episode seemed too over the top. After the first 10 minutes I closed my laptop and went back to whatever other shows I was watching (likely an episode of the Real Housewives). A few days later I over heard some ladies talking about how informative they found it so today I decided to give it another chance. Episode 2 was well done and I am glad I watched it!

Although there were parts I didn't agree with (mainly about mammograms, how they are dangerous and lead to over diagnosis), there was other advice that rang true, specifically 'let food be thy medicine'. The individuals being interviewed went on to say that sugar isn't just a poison for cancer patients, it is bad for all of us. Dieticians and Nutritionists will agree with this, entire countries are starting to acknowledge it, for example the UK just recently implemented a sugar tax, yet Oncologists still stand by the fact that sugar does not feed cancer and "everything is fine in moderation". There is clearly a disconnect here.

It's also interesting what they said about essential oils, especially frankincense and using natural oils on your body instead of synthetic lotions and potions. I had the 'ah ha' moment a few months ago when it sank in that skin is our largest organ so why was I using lotions every day that were filled with chemicals. Sure, they smell lovely but all of those toxins were being absorbed into my body. Since then, I have stopped lathering up every morning with my Bath and Body Works lotions. They have now been replaced with all natural lotions and oils like the ones sold at Pure and Simple which is one of my favourite new stores.

All in all, watching the episode was an hour well spent. If you're interested in signing up for the docu-series, here is the link....just be prepared for a ton of e-mails every day which you can delete promptly after receiving.

The Truth About Cancer: https://go.thetruthaboutcancer.com


Thursday, 14 April 2016

Now What?

Now that chemo, surgery and radiation are done, it is scary to think that you are really on your own. The doctors don't need to see you for another 3 months, there are no more appointments and you are left with a feeling of 'what the hell just happened'? The part that scares me the most is my doctor's lack of information about how to prevent recurrence going forward. My last doctors appointment went something like this:

"How are you going to monitor that I remain healthy and cancer free?" - Me
"We are going to schedule follow up appointments with you every 3 months" - Doctor
"But those appointments are just a quick physical check up and conversation...no bloodwork or scans" - Me
"We have found that ongoing scans are not helpful for prevention and cause the patients more anxiety. If you have any headaches, bone pain or other symptoms in between appointments you can always call" - Doctor
"I'm fucked" - Me

I didn't actually say that last part but it's definitely what I was thinking. My doctor did offer to at least do a mammogram on my unaffected side and an ultrasound of both breasts and axilla approximately 4 months following the end of radiation. After pushing for bloodwork, they also added it but that's all.

Aside from my concerns over the lack of follow-up, there was no discussion about how, especially with triple negative breast cancer, a low fat diet and regular exercise can lower your risk of recurrence by up to 54%. There was also no mention about how to rebuild my immune system after it has been severely compromised. It makes me so angry to think that after poisoning you with chemo, impacting your physical appearance with surgery and burning you with radiation there seems to be no interest in helping you put yourself back together.

Thankfully this is where my friends, family, social worker and naturopath come in. I have put together my own after care team that can give me the support I desperately need while trying to figure out how to move on from here. So that's what I'll focus on until my next "follow up" appointment in 3 months.