I am 30 years old and was diagnosed with breast cancer, specifically invasive ductal carcinoma. Before my diagnosis, I didn't even know what that meant. Now I have been forced into a reality where I not only know what it means but my doctors appointments and daily thoughts are filled with other previously unfamiliar words like neoadjuvant therapy, metastases, HER2 and triple negative.

I started this blog in hopes that some of the information I share may be helpful to other young women in a similar situation. Rather than posting my day to day experiences, feelings and progress, I plan to share some of the things I have learned along the way. Being dealt this hand in life at 30 years old brings with it some unique issues and questions. Will I ever have kids? How will this affect my relationships with my husband and friends? What is my long term prognosis?

Through this site you may find that my way of dealing with things is a bit different. I want to be educated about my disease and take an active role in my treatment and recovery. I want to understand every part of my pathology report, what it means, and feel confident that my doctors are recommending the best course of action. At each stage in my journey, I have experienced challenges with finding answers to my questions and ensuring that the medical professionals treating me really understand who I am and why my way of dealing with this disease may be unlike other women. My hope is that people will be able to relate to my experiences, learn from them and find some comfort that they are not alone.

Saturday, 6 August 2016

Harnessing the Immune System to Fight Cancer

An interesting read!

http://www.nytimes.com/2016/07/31/health/harnessing-the-immune-system-to-fight-cancer.html

Germany - Here I Come

After many hours online and speaking with various medical professionals, I have made the decision to seek further treatment in Germany at the Hallwang clinic. This was not an easy decision by any means but one I felt was necessary for a few reasons:
  • My latest circulating tumor cell and Oncoblot test results were less than stellar
  • The natural supplements and therapies I have been doing at home are proving to not be enough
  • A recent study presented at the 2015 San Antonio Breast Cancer Symposium showed that adding capecitabine to adjuvant therapy reduced the risk of disease recurrence by 30% and prolonged survival by 40% for patients with residual breast cancer following neoadjuvant chemotherapy and surgery. Although it sounded like a promising alternative for me at first, I chose not to pursue capecitabine for several reasons:
    1. Participants in the study were Japanese and Korean and according to my Oncologist, their genetic make-up is different so they may metabolize capecitabine differently leading to a potentially different response. Although the results of the study are very encouraging, it is also just one study and more need to be performed.
    2. My Oncologist would not prescribe it for me for the reasons above which would have left me buying "black market" capecitabine...an option I was not thrilled by.
    3. Even though it is "lighter" than AC-T, it is still chemo and does have side effects and toxicities to boot.
For these reasons, the immunotherapies offered in Germany seemed like a better fit for me rather than putting more toxins in my body and potentially making the cancer cells more aggressive and resistant. Of course, I believe that chemo is a necessary evil and do not regret my decision to do it the first time around but much of the most promising research lately has shown that immunotherapies are proving to be successful, especially with triple negative breast cancer. Unfortunately these immunotherapies like Keytruda are only available in clinical trials and very few are in Canada. Most are in the US and because I am still "in remission", I would not qualify anyways. It's too bad that I have to travel to another continent and pay out of pocket for these treatments but at the same time I am grateful that this is a viable option for me as I understand that for many, it is not.