I am 30 years old and was diagnosed with breast cancer, specifically invasive ductal carcinoma. Before my diagnosis, I didn't even know what that meant. Now I have been forced into a reality where I not only know what it means but my doctors appointments and daily thoughts are filled with other previously unfamiliar words like neoadjuvant therapy, metastases, HER2 and triple negative.

I started this blog in hopes that some of the information I share may be helpful to other young women in a similar situation. Rather than posting my day to day experiences, feelings and progress, I plan to share some of the things I have learned along the way. Being dealt this hand in life at 30 years old brings with it some unique issues and questions. Will I ever have kids? How will this affect my relationships with my husband and friends? What is my long term prognosis?

Through this site you may find that my way of dealing with things is a bit different. I want to be educated about my disease and take an active role in my treatment and recovery. I want to understand every part of my pathology report, what it means, and feel confident that my doctors are recommending the best course of action. At each stage in my journey, I have experienced challenges with finding answers to my questions and ensuring that the medical professionals treating me really understand who I am and why my way of dealing with this disease may be unlike other women. My hope is that people will be able to relate to my experiences, learn from them and find some comfort that they are not alone.

Wednesday, 9 September 2015

AC Chemo Done!

I think I was pretty lucky in terms of side effects because I didn't have many with this portion of the chemo. It's gross and not many people want to talk about it but the main issue was with constipation. If you are pro-active and start taking Colaise and Senekot as directed 1-2 days before each treatment, it should prevent any issues. Obviously the nurses keep telling me to eat lots of fibre and fruit but that doesn't always work!

Like many others doing dose dense AC which is every 2 weeks instead of every 3, I had a Neulasta shot 24 hours after chemo to boost my white blood cells. I was told that this shot is $3,000 so many people take the alternative which is Neupogen. The main difference is cost and that Neupogen is given daily as opposed to one shot. I was glad that my employer covered 60% and the remainder was paid by the Victory Program. If you are in Canada, the Victory Program may be worth looking into. The nurse that administered the shot said most people take it in their arm but I found my stomach was much less painful. Another tip to reduce the stinging of the medicine going in is to take the Neulasta out of the fridge at least one hour before the injection. I got some pain in my shoulders and neck for about 1-2 days following the shot but other than that, the side effects were minimal. Many people experience much worse than this so again, being younger probably worked in my favour.

All through AC, my white blood cell count remained pretty low so I can only imagine what it would have been without the Neulasta. Even though your count might be below the "normal" range, they can usually still go ahead with chemo unless it is really low. I ask for all of my blood test results and put them into a spreadsheet so I can track them. I have found that this can be helpful and may spark some questions when meeting with your Oncologist depending on how things are tracking. 

Now, on to Taxol...

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